Monday, November 28, 2011


What follows below appeared in the NY Times.  The print version appeared in the 11-22-11 edition.

Palindrome Day.  Biopsy Day.  And, as I await the results of the biopsy of several different areas of "abnormal looking cells" accumulated by the doctor, I'm afraid I'm going to take an oppositional view of the final paragraph that explains how they managed to lose the word cancer when talking about cervical cell changes.

Forgive me for taking exception with the whole thing but I am The Patient.  I am The Survivor of an invasive cancer. I am The Terrified One at check up time.  I am The Captain of my health care team.  Technically, I am a breast cancer patient/survivor.  But, I had a cervical thing begin less than one year after I was "post active treatment."

I HAD a horrible pathology report a few years ago.  I had those pesky intraepithelial changes extending... blah blah blah......Ultimately, an operating room biopsy was done and ultimately to the highest power, the end result was a total hysterectomy.  That surgery, which was done exactly one year ago, was to be proactive.  I was ok but scar tissue was causing a problem with the routine annual screening.  The hysterectomy was NOT because I had cervical cancer.  It was to PREVENT THIS from happening.  Nothing to produce abnormal cells.   

And yet, my routine exam turned up abnormal cells.  WTF???  Wasn't' that the purpose of the surgery in the first place? There is always a chance cells may be left behind.  Unlikely.  But it could happen.  And I know this.  And geez, a shock....It Did Happen.  Cells left behind and cells turned abnormal since my last test six months ago.  I'm choosing the "It's Nothing" approach despite the fact that I've been BLINDSIDED each and every time I've let my guard down. But I'm not choosing total ignorance.  I was screened for CANCER last week.  And, if anything is even slightly more than "low grade" I'm fairly sure there will be some sort of treatment on the table.

This is very out of character for me.  I have NO idea what will happen should any of this stuff be "weird" and above a number 1 (please scroll to the end where the EXTRA GIANT words are underlined).  If I have a "Sort Of" a "Grade 2 neoplasia," which was renamed to remove the terror of the word cancer, I think the "sort of" treatment could possibly involve that poison/burn portion of the program.  Under normal circumstances this would not be the case.  This "non cancer" would involve an additional surgical (and "curative") biopsy.  My circumstances aren't normal.  The parts were already removed.  One year ago.  In other words, there's nothing to slash.  Leaving the options:  burn, poison or do nothing.

It just better BE nothing because I could be tempted to DO nothing which I'm sure would be against the wishes of the gynecological oncologist.  Oh, I keep forgetting, if it's "something," it's not cancer because they came up with a better way of saying "something."  The problem with this scenario?  They haven't come up with a better way of treating "something."  The minute neoplasia requires radiation or chemotherapy because it will spread if nothing is done, well, hell, that sounds an awful lot like cancer to me.

I'm pretty sure I'm being unfair.  In fact, I'm certain I am.  Most people without a cervix don't end up like me.  Aren't I just SO special??  And the wait continues.  Day 6 and counting.  Sure wish I knew what was happening in that petrie dish.  I'm sure it's nothing.  Yes, definitely.  It's NOTHING.  Worst case, "weird cells" ... not cancer.  Just Weird Cells. Weird cells that ***could*** require ....  Nevermind, I'm not going there.  

This is the NY Times article:


My friend’s mother got terrifying news after she had a mammogram. She had Stage 0 breast cancer. Cancer. That dreadful word. Of course she had to have surgery to get it out of her breast, followed by hormonal therapy.  Or did she?

Though it is impossible to say whether the treatment was necessary in this case, one thing is growing increasingly clear to many researchers: The word “cancer” is out of date, and all too often it can be unnecessarily frightening.
“Cancer” is used, these experts say, for far too many conditions that are very different in their prognoses — from “Stage 0 breast cancer,” which may be harmless if left alone, to glioblastomas, brain tumors with a dismal prognosis no matter what treatment is tried.
It is like saying a person has “mental illness” when he or she might have schizophrenia or mild depression or an eating disorder.
Now, some medical experts have recommended getting rid of the word “cancer” altogether for certain conditions that may or may not be potentially fatal.
The idea of cancer as a progressive disease that will kill if the cells are not destroyed dates to the 19th century, said Dr. Otis Brawley, chief scientific and medical officer at the American Cancer Society. A German pathologist, Rudolph Virchow, examined tissue taken at autopsy from people who had died of their cancers, looking at the cells under a light microscope and drawing pictures of what he saw.
Virchow was a spectacular artist, and he ended up being the first to describe a variety of cancers — leukemia, breast cancer, colon cancer, lung cancer.
Of course, his patients were dead. So when he noted that aberrant-looking cells will kill, it made sense. The deranged cells were cancers, and cancers were fatal.
Now, Dr. Brawley said, the situation is very different. Instead of taking tissue from someone who died, a doctor takes tissue from a living patient, threading a thin needle into a woman’s breast or a man’s prostate, for example. Then a pathologist looks for abnormal cells.
Yet “how it looks under a microscope,” Dr. Brawley said, “does not always predict.” That is especially true for things like Stage 0 breast cancer or similar conditions in other areas of the body — conditions detected by screening and not by symptoms or by feel.
Researchers have come to appreciate this conundrum.
“The definition of cancer has changed,” said Dr. Robert Aronowitz, a professor of history and sociology of medicine at the University of Pennsylvania.
Many medical investigators now speak in terms of the probability that a tumor is deadly. And they talk of a newly recognized risk of cancer screening — overdiagnosis. Screening can find what are actually harmless, if abnormal-looking, clusters of cells.
But since it is not known for sure whether they will develop into fatal cancers, doctors tend to treat them with the same methods that they use to treat clearly invasive cancers. Screening is finding “cancers” that did not need to be found. So maybe “cancer” is not always the right word for them.
That happened recently with Stage 0 breast cancer, also known as ductal carcinoma in situ, or D.C.I.S. It is a small accumulation of abnormal-looking cells inside the milk ducts of the breast. There’s no lump, nothing to be felt. In fact, Stage 0 was almost never detected before the advent of mammography screening.
Now, with widespread screening, this particular diagnosis accounts for about 20 percent of all breast cancers. That is, if it actually is cancer. After all, it is confined to a milk duct, has not spread into the rest of the breast, and may never spread if left alone — it might even go away.
It could also break free and enter the breast tissue. But for now, it is hard to know in many cases whether it makes any difference to treat D.C.I.S. right away or to wait to see if it spreads, treating it then.
Two years ago, an expert panel at the National Institutes of Health said the condition should be renamed. Get rid of the loaded word “carcinoma,” the panel said. A carcinoma is invasive; D.C.I.S. has not invaded the breast. If those cells do invade, they are no longer D.C.I.S. Then they are cancer. So call the condition something else, perhaps “high-grade dysplasia.”
The word “cancer” is so powerful it overwhelms any conversation about what Stage 0 breast cancer actually is, said Cynthia Pearson, executive director of the National Women’s Health Network. When women contact her group to ask about cancer treatments, “sometimes we’re well into the conversation with them before it comes out that they don’t actually have an invasive cancer.”
The same situation arises with prostate cancer screening.
The pathologist Donald Gleason, who invented Gleason scoring for prostate tumors, wanted to rename a very common tumor — the so-called Gleason 3 + 3 — “adenosis” instead of cancer, Dr. Brawley said. His idea was that by calling a 3 + 3 “cancer,” men and their doctors would feel they had to get rid of it right away.
Despite Dr. Gleason’s wishes, 3 + 3 cells are still called cancer. And despite the panel’s advice about D.C.I.S., that name has not changed either.
Cervical cancer specialists had better luck. In 1988, they changed the name of a sort of Stage 0 of the cervix. It had been called cervical carcinoma in situ. They renamed it cervical intraepithelial neoplasia, Grades 1 to 3, taking away the cancer connotation.
But Dr. Brawley, for one, has not given up on educating doctors and patients about the general inadequacy of the word “cancer.” As he put it, “The movement is not quite dead.”


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