Rare Diseases. Today, there is a global initiative to bring together the communities and the researchers.
Even though the diseases are rare, there are many living with rare diseases. According to statistics, there are more than 60 million people afflicted by over 6000 rare diseases in the US and Europe alone. Not such a rarity.
Doing my part to share this information with as many people as possible. Take some time to look around the website.
If I were a bit more coherent, I'd share much of the information here rather than suggest clicking the link.
I'm still recouping from a bone graft in my jaw. Not complaining, just observing that the recovery is taking longer than I expected. I thought I'd skip out of the oral surgeon's office, use the pain meds and be loopy but functional. It didn't play out exactly as I hoped or planned.
Today, I'll be watching a hashtag hoping to see a global push on behalf of all of those living with rare diseases. Tomorrow, I'll be watching Washington DC to see if spending cuts can be handled a bit more maturely.
Sunday? I'll be singing Happy Birthday to Mom.....
And Monday, I will be back. Swelling gone, pain gone, on the mend. Trying not to think about the CT scan, the sinus lift and the implant -- all looming on the not so distant horizon.